Anyone who has met me knows that I'm often painfully precise. My husband often comments how this tendency has shown up in our marriage and our parenting and now my kids often hold our feet to the fire on the words that come out of our mouths. My parents got me a shirt for my … Continue reading Language, Part I
Category: Advocacy
ReBlog from Journeying Beyond Breast Cancer: Weekly Round-Up
It’s that time of the week again when I bring you the top posts I’ve come across this week. These posts have left an impact on me, they have either … Weekly Round-Up
Reblog from DiepCJourney: Microsurgery and DIEP Flap Breast Reconstruction and all it’s Worth
Anyone who has had to have surgery and reconstruction due to a cancer diagnosis or potential cancer diagnosis will confidently and correctly tell you that this experience is so very different from an augmentation or other breast surgery. There are multiple options for the type of reconstruction and a federal law requires that insurance companies … Continue reading Reblog from DiepCJourney: Microsurgery and DIEP Flap Breast Reconstruction and all it’s Worth
Struggling to Stay Alive
As some of you follow me on Twitter, you've probably noticed some of my "rage tweeting" recently over some frustrations I've encountered with the healthcare system. Over the past almost 6 years of living with Stage IV Metastatic Breast Cancer (MBC), I’ve noticed that things usually work pretty well for a while but then there … Continue reading Struggling to Stay Alive
Honoring others at the end of life
If you’ve been reading my blog for any length of time, you’ll have read a few posts about handling the loss of friends in the Stage IV Metastatic Breast Cancer (MBC) community. Some of the posts that come to my mind are: Living with Loss, On Surviving the death of Friends, and To Bear Witness. … Continue reading Honoring others at the end of life
Attribution
Recently, I was scrolling through Facebook and I came across a post in a closed support group for those us living with Stage IV Metastatic Breast Cancer (MBC) that really resonated with me. As I read through the post, I realized that it felt really familiar and by the time I got to the end … Continue reading Attribution
Xeloda and Topical Heparin
In the parlance of cancer treatments, I am currently on my fifth (5th) line, meaning the fifth (5th) set of medications to treat the cancer in my body since 2017. For anyone who is curious, here are the lines of therapy that I've been on thus far: Adriamycin and cytoxin -- June/July of 2017 Ibrance … Continue reading Xeloda and Topical Heparin
Comparative suffering
Recently, during a webinar I was moderating for SurvivingBreastCancer.Org, Jennifer O’Brien said something along the lines of “comparative suffering is a crock of shit.” The webinar was all about the amazing organization Soaring Spirits, which supports people grieving after their person has died and which I encourage all of you to check out and support. … Continue reading Comparative suffering
Facing 2023 without dear friends
I'm pretty sure that if I go back through all of my posts since 2018, there are quite a few about loss, about death. Frankly, I don't have the energy to count them all up, but I know the posts are there because I think about and experience loss a great deal. At no other … Continue reading Facing 2023 without dear friends
Breaking into Advocacy
During the recent San Antonio Breast Cancer Symposium (SABCS), a comment was posted on a post that continued a picture of a few of us hamming it up for the camera with the person commenting lamenting how they weren't part of the "in crowd" in MBC advocacy. The same picture was posted in a few … Continue reading Breaking into Advocacy