Extravasation

Ok, the first time I heard this word, I confess that I was confused. Extra, what? And then I learned more and I knew that I needed to share. The formal definition of "Extravasation" from the National Institute of Cancer is: "The leakage of blood, lymph, or other fluid, such as an anticancer drug, from … Continue reading Extravasation

Doctors and patients

Before my Stage IV Metastatic Breast Cancer (MBC) diagnosis, I went to the doctor once a year for my well-woman visit with my OB-GYN. My husband prodded me to get a Primary Care Physician (PCP) many times over the years, but since I rarely got sick, I never saw the need. I'd head to urgent … Continue reading Doctors and patients

The Pros and Cons of Community

I've written before about the benefits of the Metastatic Breast Cancer (MBC) Community as well as the cons that we often experience due to the cliques and other struggles. I just wrote again about how often those of us who are hurting then hurt others. The weekend of July 17th, I traveled to New York … Continue reading The Pros and Cons of Community

JOMO IRL

I heard this term recently somewhere (and I totally forget where) and it stands for: THE JOY OF MISSING OUT ON/IN REAL LIFE What?!? Sounds totally counter-intuitive but bear with me ... As we come out of some of the significant restrictions from COVID and so many things begin to re-open, I am struck by … Continue reading JOMO IRL

Little Deaths

Another patient advocate living with Stage IV Metastatic Breast Cancer (MBC) wrote a post on Facebook a while back about all the things we lose to MBC. She labeled these things "little deaths" to distinguish these losses from one's eventual death, but also, I believe, to drive home the point that we must grieve the … Continue reading Little Deaths

Remembering Emily Garnett

On July 17, 2021, from noon until 7 pm, on a very warm and often overcast day in Westchester, NY, friends and family gathered to celebrate the life of Emily Garnett. Some of you who are reading this post knew her or knew of her, others maybe not. When I went back to my list … Continue reading Remembering Emily Garnett

Hurt People Hurt People

I’ve written before about the horrifying reality that there are those people who pretend to have cancer, even metastatic cancer. You can read about those previous experiences here. That was quite a while ago and happened when I was relatively new to Stage IV metastatic breast cancer (MBC) and the culture within that community (also … Continue reading Hurt People Hurt People

Surfside disaster

Miami, Florida, has been in the national news lately for a truly horrific disaster. On June 24, 2021, in the wee hours of the morning, one of the towers of the 12 story condo building called “Surfside” on Miami Beach suddenly collapsed. Most of the residents and guests were deeply asleep. A lucky few heard … Continue reading Surfside disaster

Triggers

I've begun to understand better how often I am "triggered" by a variety of things and how that relates back to traumas I've undergone in my life, especially living with Stage IV Metastatic Breast Cancer (MBC) since my de novo diagnosis in 2017. Identifying and defining a trigger is often helpful for me to understand … Continue reading Triggers