A follow up to billing issues …

I wrote a blog post recently about feeling in the middle between my insurance company and my cancer center this week and you can access that here if you are curious about that. In the midst of that experience, I had multiple conversations with people in my life about medical billing issues AND received bills … Continue reading A follow up to billing issues …

305PinkPack

As many of you know, I currently live in Miami, Florida and I've posted/talked about my involvement with the 305PinkPack at various times. The Pack, as we often term it, is the brainchild of Rosemary Carrera, a breast cancer survivor, a medical professional, and all around amazing person. Here is how she describes her experience … Continue reading 305PinkPack

Patient Centric

For the last five (5) years, I’ve been an active patient. This means I see a plethora of doctors regularly in a variety of places/states/types of offices, I have a pharmacy in my bathroom for cancer treatments and all the side effucks, and I’m in infusions centers, phlebotomy labs and hospitals regularly. I also ask … Continue reading Patient Centric

Tumor Heterogeneity

"Tumor Heterogeneity" (TH) is a phrase that often comes up in discussions with my medical team and with researchers as we all attempt to understand and anticipate the behavior of the cancer cells. From some of my discussions with other patients on social media, there does seem to be a lot of confusion about this … Continue reading Tumor Heterogeneity

Book Review: Hope Rising; How the Science of Hope Can Change Your Life

Recently, a dear friend and fellow MBC'er Andra Kalnins and her sister, Ilga Leimanis, began posting about their project entitled "Sister Hope." I was intrigued and followed how they presented the culmination of their discussions and activities as they worked together to process Andra's recurrent Stage IV Metastatic Breast Cancer diagnosis. As I did, I … Continue reading Book Review: Hope Rising; How the Science of Hope Can Change Your Life

Guilt vs Shame, Part II

In Part I, which was published last week and you can access here, I examined whether a person struggling with what they are labeling "survivor's guilt" are actually experiencing shame. My conclusion, based on the definitions, my own experiences, and some research, was that there is a combination of both. One element that I believe … Continue reading Guilt vs Shame, Part II

Guilt v Shame, Part I

Recently, I was talking with someone who doesn't have a genetic propensity for cancer while her sister not only inherited the propensity but also has de novo Stage IV Metastatic Breast Cancer (MBC). In discussing how this dichotomy is dealt with in their family versus my own, she mentioned that she has had to deal … Continue reading Guilt v Shame, Part I

Genomic Testing of Liver Tissue

Back in January, I had a biopsy done of two of the three largest liver mets that were part of the progression found by the January PET/CT. I wrote the following three (3) posts as we learned more about the first soft tissue metastases that we've ever been able to test: Brace, Brace, BraceReceptorsMutations Become … Continue reading Genomic Testing of Liver Tissue

The conundrum of Will Smith’s slap

Recently, the world was rocked a little when Will Smith slapped Chris Rock on live television. My husband told me about it around the time that it happened and I watched social media explore the issues for the next few days. There are many strong views offered up on all sides of the issue, many … Continue reading The conundrum of Will Smith’s slap

Aging and Cognitive Decline

One of the scariest side effects of ongoing cancer treatment, for me, is the affect on my cognitive abilities. There's a fancy term for this -- treatment related cognitive impairment -- but most people call this "chemo brain." For me, it was years after IV chemotherapy when a physical medicine doctor finally noticed that I … Continue reading Aging and Cognitive Decline