I just want to say at the outset that I'm well aware of the fact that some of the history and the basis for the holiday involving the Pilgrims and the Native Americans is extremely problematic. For us, in our family, we focus on togetherness and sharing what we are thankful for. This year, I … Continue reading Thanksgiving 2020
For those of us living with Stage IV Metastatic Breast Cancer (MBC), death is a topic that comes up a lot. I've written before about Death, Death and Hurricanes, Grief, Grief and Love; Love and Grief, and if you'd like to read more about my overall thoughts, please feel free to check out those other … Continue reading Death and Forgiveness
Every now and again, I'm asked to participate in discussions about Cancer online. I suppose a byproduct of being open and vocal on social media means that other notice! Fazla Seker, MD is the CEO of Molli Surgical, which is involved in developing medical devices that makes surgery and other medical procedures easier on doctors … Continue reading Cancer and COVID
When I was diagnosed with Stage IV Metastatic Breast Cancer (MBC) in 2017, I thought I knew what fatigue was. I've powered through many nights of none or little sleep in my life, through graduate school, through starting a business that occupied every waking moment, through two pregnancies, and two children while managing said business. … Continue reading Why is Cancer Fatigue so debilitating?
I have found myself encountering different crisis throughout my life and the times that I've handled that crisis better (not particularly well, just better) was when I found a group of people in the same or similar phases of life so that we could face that crisis together. Whether it was wanting to be married … Continue reading Support Groups
WordPress told me that I’ve now officially been blogging on this site for two full years the other day ... I’m rather amazed that two years have passed and while I know that’s not abnormal from being a parent, the realization that the days indeed appear long but time passes quickly, can be sobering. I … Continue reading An Anniversary and a Radio Show
The inaugural Orlando Metsquerade was in February of 2019 and I wrote about my experiences attending this lovely event here. I put together a collage of some of my favorite pictures from that time where we spent time with some amazing friends below ... Starting in the top left, and continuing clockwise: 1) Heather Rich, … Continue reading Orlando Metsquerade 2020
The beautiful Adiba Barney, who made the lovely graphics I’ve been sharing all month, is also living with Stage IV metastatic breast cancer and she just published a book!! I highly recommend learning more about her experiences with MBC and taking the worst thing that has happened to her and turning it into purpose. Her … Continue reading Did you know!?
Pain. It's my constant companion. Adiba and I share the status of having bone only metastases. While having bone only metastases is associated with a statistically longer life expectancy (approximately 10 years rather than the overall 2-3 year median life expectancy), the constant and chronic pain can really wear on a person. Here's how Adiba … Continue reading BCAM: October 28th
Medication--those of us with Metastatic Breast Cancer (MBC), we take a LOT of medication, every day. Sometimes, we have no choice as to the modality or location the medication is taken. Some examples of the modality are: 1) pill; 2) injection; or 3) infusion. Some examples of location are: 1) home; 2) doctor's office; 3) … Continue reading BCAM: October 24th