I hate being vulnerable and I suspect that most people don't particularly enjoy the feeling either. Recently, I had to be in a situation of physical vulnerability (i.e., naked) in order to access radiation treatment and I started thinking about how often those of us who are patients are put into a position of vulnerability. … Continue reading Vulnerability

I understand … another rant

I warned you, didn’t I?! I hate it when people who have no idea what they are talking about make a vague and surface-y attempt to appear empathetic by saying “I understand.” Also, the tone is a big issue. When I am attempting to advocate for myself and demonstrate to someone how their behavior demeans … Continue reading I understand … another rant

2021 Webinars in Partnership with SBC, the first quarter

In the first quarter of 2021, we welcomed some truly amazing people to the webinar series with and learned so many different amazing things from some truly exemplary human beings. Every time I think we might begin to run out of new and amazing topics, something else occurs to someone who tells us or … Continue reading 2021 Webinars in Partnership with SBC, the first quarter

An Ode to Tooth #18

You were in my mouth when I was born And you have stuck with Me for decades Through diets and binges Through braces and retainers Through pregnancies and nursing Through it all, you anchored the Most used joint in my body and allowed for Retainers and braces to do their work I always knew I … Continue reading An Ode to Tooth #18

“You got this,” a rant

All too often when I or someone else in the Stage IV Metastatic Breast Cancer (MBC) community post about a struggle or a challenging experience, the response is "You got this." That comment is often accompanied by an emoji of a flexed bicep, likely meant to communicate strength or that the basis for the words … Continue reading “You got this,” a rant

Collective Grief

Yesterday, the amazing Kelly Grosklegs joined Laura Carfang and I for our biweekly conversation about issues that the Metastatic Breast Cancer (MBC) community faces, with a focus on end of life issues. Our subject this week was Grief and Laura titled our conversation a "Grief Circle," which I love. The conversation was streamed live on … Continue reading Collective Grief