#MetsMonday

I can't find an official definition of #MetsMonday, so I'll give you mine -- "#MetsMonday exists to remind each of us that those of us with metastatic cancer need research and intervention in order to lead full and fulfilling lives." If you have a definition, I'd love to hear about it! #MetsMonday is why I … Continue reading #MetsMonday

Palliative Care Project

Palliative care has to be one of the most misunderstood elements of care that I've encountered. I count myself amongst the people who knew next to nothing about it before I was diagnosed with a terminal illness. I'd always lumped palliative care in with hospice, frankly, and I've discovered that many other people think the … Continue reading Palliative Care Project

Legacy Project

What does it mean to leave a legacy? How does this change with a diagnosis of Stage IV Metastatic Breast Cancer (MBC)?   I've been pondering these questions for most of the last three (3) years I've been living with Stage IV MBC and I don't know that I have THE answers; at the same … Continue reading Legacy Project

Take the Inclusion Pledge with me

From Tigerlily Foundation:  "The Facts: Black women have 40% higher mortality rates;Black women are often diagnosed at later stages when treatments are limited, costly and the prognosis is poor;Black women are often diagnosed at younger ages and have more aggressive breast cancer;Black women make up only 6% of clinical trial participants. Take the #InclusionPledge: "WE … Continue reading Take the Inclusion Pledge with me

Powerlessness

Some of you may remember the posts I've written about how I often feel dehumanized at the hands of the American Healthcare System. Looking back, I realize that I've long felt this way, but since my interaction with doctors and visits to the doctor were so few and far between, it became somewhat expected. Now … Continue reading Powerlessness

Missing Out

I've written before about the Fear of Missing out or "FOMO" as it pertains to parenting and the limitations of MBC that affects my ability to actively and physically participate in life with my children. Thanks to COVID-19 and the pandemic, we're definitely drowning in family time right now. At the same time, the lack … Continue reading Missing Out

When a loved one gets it wrong

The impetus for this post came from a rather difficult conversation in one of my breast cancer support groups recently. I'm not referring to any one particular person in this post and some of it isn't even about me or my own experiences. This post is purely my own musings. At the same time, I've … Continue reading When a loved one gets it wrong

National Cancer Survivor’s Day

I started this post a little while ago and have been coming back to it over the last week or so trying to figure out what I want to say, what I feel about today and the purpose of today. If this post feels disjointed that’s because that’s the way I feel right now in … Continue reading National Cancer Survivor’s Day

Expectations, Part I

I’ve been thinking a lot lately about expectations and particularly the expectations that have been unfulfilled in my life since I've been dealing with Stage IV Metastatic Breast Cancer (MBC). For me, I often don't realize in the moment when something happens (or doesn't happen) that an expectation has been unfulfilled, it's usually once I … Continue reading Expectations, Part I