IV Our Lives

I've written before about the play that Dr. Andrew Silver at Mercer University has written based on interviews of men and women living with Stage IV Metastatic Breast Cancer (MBC). I had the honor of reading Anya Silver's poetry in the first reading of the play back in Washington DC pre-Covid, in October of 2019. … Continue reading IV Our Lives

#PullUpaSeat

As many of you know, I'm white and my husband is black. Before I met Elliot, I didn't understand much about the experience of those who are black in our country. Elliot (and his family) have taught me so much about race and the experience of those who are not white in our country. After … Continue reading #PullUpaSeat

Glossary of my Metastatic Breast Cancer (MBC) Experience

A is for Advocacy, because I don't know any other way to do this living with MBC thing. B is for Baths since soaking in an Epsom salts bath each night has been so helpful! C is for Camaraderie, since MBC is the worst club with the best people. C is also for Cowabunga, which … Continue reading Glossary of my Metastatic Breast Cancer (MBC) Experience

Betrayal

Definition of betrayal 1: the act of betraying someone or something or the fact of being betrayed : violation of a person's trust or confidence, of a moral standard, etc. the betrayal of a friend, a betrayal of trust, a betrayal of one's principles.2: revelation of something hidden or secret a betrayal of one's true feelingshttps://www.merriam-webster.com/dictionary/betrayal Betrayal is such a tricky thing. The definition is seemingly straightforward; yet the experience of betrayal … Continue reading Betrayal

Pain, Healing, and Purpose

Pain can take many forms. As a pretty concrete person, when I hear pain, I first think about physical pain. Since I live with chronic pain, I'm well acquainted with this kind of pain. However, I'm also acquainted with psychological and emotional pain, not just as a woman living with terminal cancer, but also as … Continue reading Pain, Healing, and Purpose

Cancer Prevention vs Risk Reduction

I've said it over and over -- language matters. Language matters a great deal. A hot button issue for many in the cancer community, for a variety of reasons, is the terminology around awareness and prevention. It's such a hot button for me, I just shuddered as I typed those words and I've heard others … Continue reading Cancer Prevention vs Risk Reduction

Dynamic/Invisible Disability

I've written a lot about labels and fitting into groups of people or feeling a part of a group of people. I think that means I think about it a lot. Bottom line, as I've said over and over, belonging and feeling accepted is fundamental and words/labels really do matter, especially when you are a … Continue reading Dynamic/Invisible Disability

COVID Vaccine, Part I

I've seen so many people assert quite confidently that the COVID vaccine is perfectly safe and an equal number of people quite confidently say that it is not at all safe. Who is right? I have no idea. Were you thinking I'd say something else? I do have a lot of opinions and I'm not … Continue reading COVID Vaccine, Part I

Surge Capacity

However you want to describe my personality, I'm a good person in a crisis. I am able to assess and understand data pretty quickly, and I've honed my ability to collaborate and find solutions amidst the chaos while holding myself aloof from the emotions. It helps that I'm usually able to wait to fall apart … Continue reading Surge Capacity

Metastatic Parenthood

I count myself blessed to be surrounded by amazingly talented and resilient advocates in the MBC community. Everywhere I look, there's another advocate who saw the missing pieces of support in his/her own life or in the lives of the people around them and is seeking to address that gap. I've often said that the … Continue reading Metastatic Parenthood