Endurance and pain Journal entry by Abigail Johnston — Jun 22, 2018 The last few months have been full of lessons of endurance. My hips continue to hurt, especially the left hip, and the instructions to build muscle mass has meant that I must be aware of activities and plan accordingly. When I know how much activity to … Continue reading From June 22, 2018 →

Good News!! Journal entry by Abigail Johnston — May 22, 2018 The orthopedic oncologist called today (finally) and told me that the X-rays showed the likely culprits of my pain are humdrum anatomical anomalies and old bleeding that has calcified. We are still going to do the mri to rule out any issues that we can’t see with … Continue reading From May 22, 2018 →

Still don’t know for sure ... Journal entry by Abigail Johnston — May 18, 2018 What’s really going on but the X-rays came back yesterday. I got the films and the radiologist report sent to me directly. Doesn’t show fractures (thank God) but recommends an mri because the rods and screws blocks a complete view of the bones. … Continue reading From May 18, 2018 →

Here we go again ... Journal entry by Abigail Johnston — May 15, 2018 I’ve been having left hip pain for a few weeks. Well, in reality, more than normal hip pain. I always have hip and knee pain from my surgery last June but this has been much worse. I finally asked my medical oncologist for a … Continue reading From May 15, 2018 →

Back from the cruise!! Journal entry by Abigail Johnston — Mar 31, 2018 We took the boys on an unforgettable Disney Cruise over Spring Break. It was an amazing time with them and my parents. I was reminded again and again of my limitations and the ongoing side effects of the medication and that did make things bittersweet. … Continue reading March 31, 2018 →

Tumor markers Journal entry by Abigail Johnston — Mar 1, 2018 Every month, my doctor looks at my tumor markers. These are protein levels in my blood that can indicate growth or proliferation of cancer cells. Each different marker can indicate different types of cancer cells growing in various sites, like, for instance, in my bones. As soon … Continue reading From March 1, 2018 →

Settling in ... Journal entry by Abigail Johnston — Feb 20, 2018 We’re settling into 2018 and getting back into the routine we’d started last year. Having Amy and Steve and Ella here (along with Tommy and Katie and Anna and Kris) has been super fun. The boys get to see their cousin several times a week and … Continue reading From February 20, 2018 →

Updates Journal entry by Abigail Johnston — Jan 9, 2018 Got the results of the latest pet scan and there are no new lesions as well as an overall good response to the meds. Previously seen lesions are either gone or significantly reduced. My current oncologist is happy with the results. On the flip side, I spent the … Continue reading From January 9, 2018 →

So long 2017 ... Journal entry by Abigail Johnston — Dec 21, 2017 So much has happened and changed in the last few months. We’ve relocated to Miami and I’ve been hard at work recreating the medical team here. So thankful for Baptist Hospital and the team approach they take to patient care. Some of my medication had … Continue reading From December 21, 2017, my 39th Birthday →

Back to the hospital ... Journal entry by Abigail Johnston — Oct 21, 2017 Being immunocompromised is no joke. The boys we’re under the weather this week with a cold and I knew I needed to be careful. I rested and tried to be careful but it got to me anyway. Thursday night, I was very sleepy and … Continue reading From October 21, 2017 →