Back from the cruise!! Journal entry by Abigail Johnston — Mar 31, 2018 We took the boys on an unforgettable Disney Cruise over Spring Break. It was an amazing time with them and my parents. I was reminded again and again of my limitations and the ongoing side effects of the medication and that did make things bittersweet. … Continue reading March 31, 2018 →

Tumor markers Journal entry by Abigail Johnston — Mar 1, 2018 Every month, my doctor looks at my tumor markers. These are protein levels in my blood that can indicate growth or proliferation of cancer cells. Each different marker can indicate different types of cancer cells growing in various sites, like, for instance, in my bones. As soon … Continue reading From March 1, 2018 →

Settling in ... Journal entry by Abigail Johnston — Feb 20, 2018 We’re settling into 2018 and getting back into the routine we’d started last year. Having Amy and Steve and Ella here (along with Tommy and Katie and Anna and Kris) has been super fun. The boys get to see their cousin several times a week and … Continue reading From February 20, 2018 →

Updates Journal entry by Abigail Johnston — Jan 9, 2018 Got the results of the latest pet scan and there are no new lesions as well as an overall good response to the meds. Previously seen lesions are either gone or significantly reduced. My current oncologist is happy with the results. On the flip side, I spent the … Continue reading From January 9, 2018 →

So long 2017 ... Journal entry by Abigail Johnston — Dec 21, 2017 So much has happened and changed in the last few months. We’ve relocated to Miami and I’ve been hard at work recreating the medical team here. So thankful for Baptist Hospital and the team approach they take to patient care. Some of my medication had … Continue reading From December 21, 2017, my 39th Birthday →

Back to the hospital ... Journal entry by Abigail Johnston — Oct 21, 2017 Being immunocompromised is no joke. The boys we’re under the weather this week with a cold and I knew I needed to be careful. I rested and tried to be careful but it got to me anyway. Thursday night, I was very sleepy and … Continue reading From October 21, 2017 →

Done with Plastic Surgeon Journal entry by Abigail Johnston — Oct 16, 2017 The next two weeks is full of last appointments with various doctors in anticipation of moving to Miami. Today was my last appointment with my plastic surgeon who worked with my breast surgeon to ensure a natural looking result after my lumpectomy in April. I … Continue reading From October 16, 2017 →

Insurance companies Journal entry by Abigail Johnston — Oct 2, 2017 As some of you know, I’m a bit of an insurance junkie. Elliot was a bit mystified how much of an easy mark I’ve always been for insurance of various kinds. Yet, when the worst has happened we’ve been thankful for the various policies I’ve had to … Continue reading From October 2, 2017 →

A tale of two doctors ... Journal entry by Abigail Johnston — Sep 27, 2017 It was the best of times and the worst of times ... lol. Two doctor appointments today and good news all around. Saw medical oncologist's office first. Tumor markers are still trending DOWN (from 89 to 63 and from 2 to .6) and … Continue reading From September 27, 2017 →

The aftermath ... Journal entry by Abigail Johnston — Sep 26, 2017 The aftermath of the hysterectomy has been the best so far of the 4 surgeries this year. I'm feeling and moving better every day. It's been similar to the two csections in terms of recovery but better. Lifting restrictions of 5 lbs continues for 6 weeks … Continue reading From September 26, 2017 →