I'm still attempting to process all of the information I learned today. The day started early at 7:00 a.m. and I am just finishing up for the night as I type, nearly 8:00 p.m. It's CST here in San Antonio, so that's probably messing with my biological clock a bit. I'm also feeling my "introverted-ness" … Continue reading Day #2, San Antonio Breast Cancer Symposium, 2018
Two planes and a time change; four (4) different people to help with me with my bag; at least a mile walked in three different airports, and I landed in San Antonio, Texas Tuesday afternoon. The high is in the high 50s/low 60s and that's COLD for this Florida girl. This is is my first … Continue reading Day #1, San Antonio Breast Cancer Symposium, 2018
Wind rain and lightning!! Journal entry by Abigail Johnston — Sep 11, 2017 Irma was quite the storm and despite traveling over land for many miles before it reached us, it was still around a category one at our house. Glad it hit at night so the kiddos slept through it. Thankful we live in a newer neighborhood … Continue reading From September 11, 2017
Hysterectomy oophorectomy hysterectomy Journal entry by Abigail Johnston — Aug 31, 2017 I went to my preop appointment today with the gyn oncology surgeon and plans have changed yet again!! I respect his process but he keeps changing his mind ... as far as I understand it, since I did test positive for the ATM genetic mutation, he … Continue reading From August 31, 2017
Discharged Journal entry by Abigail Johnston — Aug 28, 2017 From ongoing care with my Orthopaedic surgeon. Great news is that the right femur bone where there was the 5 cm tumor is showing remodeling (meaning the bone is replacing the cancer). Weird to see the hardware inside my bones and the screws securing the rods but thankful … Continue reading From August 28, 2017
Great news!! Journal entry by Abigail Johnston — Aug 24, 2017 Now we know that tumor markers aren't everything and aren't precise ... BUT ...my blood work from yesterday came back and the changes are amazing!! One marker started at 75 and is now 2. Yes, 2, not a typo. That's normal!!!!! The other one started at nearly … Continue reading From August 24, 2017
What's next ... Journal entry by Abigail Johnston — Aug 21, 2017 Saw the medical oncologist today and discussed the medication that they will use next to treat my cancer. Starting Ibrance and Letrozole now. Hope is that I will be able to reach NEAD which stands for no evidence of active disease. The odd thing about this … Continue reading From August 21, 2017
Second opinions Journal entry by Abigail Johnston — Aug 12, 2017 We've toured Florida over the past few days with hundreds of pages of records and CDs with scans! First stop was Tampa and the Moffitt Cancer Center and then we ended up in Miami at the Baptist hospital Cancer Center, newly connected to Sloan Kettering in NY. … Continue reading From August 12, 2017
Home again!! Journal entry by Abigail Johnston — Aug 8, 2017 Was released to come home today. Pain free!!! No real idea why I was in so much pain but discovered that I do have a bone met near the left TMJ. Our assumption is that all the sinus pressure, inflammation and mucous put pressure on the exact … Continue reading From August 8, 2017
Pain, scans and back to the hospital we go ... Journal entry by Abigail Johnston — Aug 6, 2017 As many of you know, I had my repeat bone scan on Friday to test the effectiveness of the chemo and radiation and to help determine next steps. It worked out well that I was already getting scanned because … Continue reading From August 6, 2017
No Half Measures 