From August 8, 2017

Home again!!

Journal entry by Abigail Johnston — 

Was released to come home today. Pain free!!! No real idea why I was in so much pain but discovered that I do have a bone met near the left TMJ. Our assumption is that all the sinus pressure, inflammation and mucous put pressure on the exact right area. No doctor has confirmed this but no one has offered any other ideas either.

Bone scan results are in and it appears to show stable mets but no real indication of progress. Medical oncologist is pleased with this so am trying to adjust my expectations and remind myself that this is my new normal.

Results of the full genetic panel came in today and I am positive for the ATM gene. Increased risk for both breast and pancreatic cancer.

Consult with Moffit Center is tomorrow and then with Baptist Hospital on Friday. Hoping for some insight and help interpreting what we know and don’t know.

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