Second opinions Journal entry by Abigail Johnston — Aug 12, 2017 We've toured Florida over the past few days with hundreds of pages of records and CDs with scans! First stop was Tampa and the Moffitt Cancer Center and then we ended up in Miami at the Baptist hospital Cancer Center, newly connected to Sloan Kettering in NY. … Continue reading From August 12, 2017 →

Home again!! Journal entry by Abigail Johnston — Aug 8, 2017 Was released to come home today. Pain free!!! No real idea why I was in so much pain but discovered that I do have a bone met near the left TMJ. Our assumption is that all the sinus pressure, inflammation and mucous put pressure on the exact … Continue reading From August 8, 2017 →

Pain, scans and back to the hospital we go ... Journal entry by Abigail Johnston — Aug 6, 2017 As many of you know, I had my repeat bone scan on Friday to test the effectiveness of the chemo and radiation and to help determine next steps. It worked out well that I was already getting scanned because … Continue reading From August 6, 2017 →

GYN surgeon Journal entry by Abigail Johnston — Aug 2, 2017 Scheduled surgery for September 11th. Genetic testing will break the tie between oophorectomy or hysterectomy. Surgeon leaning towards the former as part of the risk/benefit analysis. Ultrasound coming up on the 14th after we get the second opinions from Moffit and Baptist next week. Hold your children … Continue reading From August 2, 2017 →

Getting over the common cold   Journal entry by Abigail Johnston — Aug 1, 2017 I finally caught the virus that everyone else in the house has been battling for the past two weeks and have never felt so terrible with just a cold! White blood cell count is the lowest at 7 to 10 days after chemo … Continue reading From August 1, 2017 →

What's next? Journal entry by Abigail Johnston — Jul 26, 2017 Thank you to everyone who has checked in with me. It's been such a whirlwind since I got home from the hospital and I haven't done as good a job as I'd planned to keep everyone updated. So ... First round of chemo ... done! First round … Continue reading From July 26, 2017 →

Updates Journal entry by Abigail Johnston — Jul 20, 2017 It's been quite a week with daily radiation, PT visits and follow up appointments. I'm nearly done with radiation on my spine and legs and my last chemo treatment is tomorrow. After this another bone scan and then working on second opinions and gathering more … Continue reading From July 20, 2017 →

Beach weekend! Journal entry by Abigail Johnston — Jul 15, 2017 Mom and dad suggested and made it happen for us to go spend the weekend at the beach. Looking forward to watching the boys experience what are still some of the best times of my childhood. Love to you all!!

Home!! Journal entry by Abigail Johnston — Jul 12, 2017 After the blood and fluids I was cleared to come home today. Can't say enough about Florida hospital Altamonte springs. Pretty spectacular care and much better follow through on home care needs. Biggest accomplishment today ... climbed 12 stairs with the PT at the hospital and walked without … Continue reading From July 12, 2017 →