I'm a WASP (White Anglo Saxon Protestant) and I was raised in the Midwest. When I moved to Orlando for college a few decades ago, I was astonished at how much unsolicited touching occurred. I often had to explain to people that it wasn't that I didn't like them, it was just that they were … Continue reading Human Touch →

I’ve been thinking a lot lately about expectations and particularly the expectations that have been unfulfilled in my life since I've been dealing with Stage IV Metastatic Breast Cancer (MBC). For me, I often don't realize in the moment when something happens (or doesn't happen) that an expectation has been unfulfilled, it's usually once I … Continue reading Expectations, Part I →

One of the things we talk about regularly in our Stage IV cancer support groups is how often the media gets it wrong with the language that is used and when. We hear "She lost her battle" regularly and the commercials for various cancer medication are often nauseatingly upbeat with a lack of the miserable … Continue reading Ordinary Love →

I’ve often said that those of us in the breast cancer community are in the best position to know what would be helpful to the community. The men and women I’ve met in the last three years have more than impressed me with their creativity and commitment to helping others without asking anything in return. … Continue reading Electronic Resources, Overview →

In this unprecedented time, many organizations are pivoting to provide the same or similar resources electronically. The organizations who are having to adjust range from government, to non-profits, to public health, to for profit companies. Frankly, I’ve been blown away and significantly impressed at how breast cancer organizations have been able to continue to do … Continue reading Electronic Resources, LBBC →

I’m sharing this blog, that I didn’t write, about an illness that several dear friends deal with. Read on ... May 12th is Fibromyalgia Awareness Day. The day I talk about Fibromyalgia More than usual to spread awareness and reduce stigma. A brief history of …Fibromyalgia Awareness Day: Quality of life impact

I'm not a statistician and I struggled in the one statistics class I had to take in college. This is not about how to calculate or how to understand statistics as I'm so not the person to hand out that information. This post is to explore the uneasy relationship those of us with Stage IV … Continue reading Statistics →