While feeling pretty crappy after my first infusion of Enhertu, I came across a “positivity” social media campaign touting, among other things, that Stage IV metastatic breast cancer (MBC) is a chronic disease and then listened to the memorial episode about the death of Natalia Green from MBC on the podcast OurMBCLife. I found myself … Continue reading Whiplash and Hope
Category: Advocacy
Reporting from the trenches …
As much as I hate the war metaphors as applied to cancer, I also very much feel as though I’m jumping from battle to battle as I prep for the next line of treatment. Perhaps that is unkind to healthcare workers who are probably doing their best (a mantra I repeat to myself over and … Continue reading Reporting from the trenches …
The Story I tell Myself …
If you've read Brene Brown's book, Dare to Lead, you might recognize this phrase from her discussion about resilient leaders. She provides a personal example of how this question can be helpful in personal relationships as well as in a larger setting. The basic premise is that as we experience the world, we interpret it through the … Continue reading The Story I tell Myself …
Making Plans
For those of you who missed my previous post, Here We Go Again, suffice it to say that my recent progression has caused all kinds of consternation and doctor's appointments and late nights and research and angst around here since we learned that my current line of treatment has failed me. It's hard to describe … Continue reading Making Plans
It’s October Again …
While we don't see the fall seasons so much here in Florida from the trees, the rising incidences of pink smothered whatever always reminds me that October has arrived. Similar to other holidays, retailers get a start earlier and earlier in the year to capitalize on a larger timeline for sales. And while some of … Continue reading It’s October Again …
Consent
As I've been working on various elements of the plan to address the progression of cancer in my body recently (for more on this, you can read my post from last week: Here We go Again), this concept of consent comes up over and over and over in both practical and other ways. It's an … Continue reading Consent
ReBlog: Journeying Beyond Breast Cancer: Weekly Round-Up
Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me … Weekly Round-Up
Dealing with Medication Shortages
A few months ago, I started seeing articles on social media and elsewhere about medication shortages, specifically in those medications that those of us with Stage IV Metastatic Breast Cancer (MBC) are often prescribed. Since most of those articles didn't apply to any medication I am currently prescribed, I read them out of curiosity mostly. … Continue reading Dealing with Medication Shortages
Reblog: Journeying Beyond Breast Cancer’s Weekly Round-Up
T for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me … Weekly Round-Up
Mixing it up
When I was diagnosed with Stage IV Metastatic Breast Cancer (MBC) in 2017, I slowly turned to support groups and social media in general to connect with other patients after I was told not to come to an in person local support group because I would scare the participants (you can read more about that … Continue reading Mixing it up
No Half Measures 