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Category: Advocacy
Dealing with Prejudice/Racism PART I
I know this blog is about my experiences as a woman living with Stage IV metastatic breast cancer, but I need to take a small break and talk about prejudice and racism. As most of you know, I'm a WASP. I'm originally from the Midwest but I am a White Anglo Saxon Protestant. I'm married … Continue reading Dealing with Prejudice/Racism PART I
Redemption
What does this word mean to you? The dictionary meaning I found is as follows: "1. The action of saving or being saved from sin, error or evil: God's plans for the redemption of his world. [in singular] a thing that saves someone from error or evil: His marginalization from the Hollywood jungle proved to … Continue reading Redemption
Clinical Trials
Let me first say that anyone who participates in a clinical trial, at any stage, are my personal heros. It takes a lot to put your life and health on the line and I salute the trial participants and the families who agreed to participate. I am presently on my first line treatment, a drug … Continue reading Clinical Trials
How to be an Ally
When I met my now husband, Elliot, in 2006, I'd never dated anyone who wasn't as lily-white as me. In fact, the area where I went to high school in Ohio was so homogeneous, that going to UCF (That's the University of Central Florida for those of you not familiar with the Knights) for college … Continue reading How to be an Ally
Form over Substance
There are usually good reasons for doing something the same way every single time. Protocols and procedures are extremely helpful, especially when someone's health is on the line. When I was practicing law, I had lots of policies and procedures, especially for new hires and the people at the front desk. When there are employees … Continue reading Form over Substance
Medical Marijuana
I am not a doctor. I am not a medical provider. None of my statements in this blog should be taken as anything other than my own conclusions and personal experiences. Anyone who knows me knows how much of a rule follower I am. I've been been this way since I was quite going and … Continue reading Medical Marijuana
Congressional Support
Thus far, I've been successful in getting my insurance company to cover what my doctors have prescribed and, thus far, my private disability insurance company is behaving itself. Being an attorney does come in handy when it comes to fighting with various organizations -- when someone tells me no, especially when I know the answer … Continue reading Congressional Support
Fertility, Infertility and Secondary Infertility
This is a topic fraught with so many sensitive issues and let me say up front that I am not an expert on any of it. What I am is a woman, a daughter, a wife, and a mom. Some background on me ... I delayed having children on purpose because I wanted to build … Continue reading Fertility, Infertility and Secondary Infertility
Medical Professionals
At last count, I have over a dozen doctors that I have open and active treatment with. This does not include the entire medical team I had up in Orlando before we moved to Miami. Going from seeing one doctor once per year (before cancer) and never having much of anything to say or write … Continue reading Medical Professionals
No Half Measures 