National Cancer Survivor’s Day, 2022

According to the website, NCSD.org, National Cancer Survivors Day® (NCSD) is the first Sunday in June each year and is set aside as: a CELEBRATION for those who have survived,an INSPIRATION for those recently diagnosed, a gathering of SUPPORT for families, and an OUTREACH to the community.https://ncsd.org This organization, as many others do, define a "survivor" as follows: A survivor is anyone living with a … Continue reading National Cancer Survivor’s Day, 2022

Chasing a Cure, Part II, evaluating legitimacy

In Part I, I laid out some of reasons why finding a cure for cancer is a really big deal. A REALLY BIG DEAL. So many people's lives are riding on medical innovation and creativity, mine included. And so it's important to be able to evaluate whether a "source" or a "study" is something to … Continue reading Chasing a Cure, Part II, evaluating legitimacy

Chasing a Cure, Part I, a PROBLEM

No one wants there to be a cure for cancer more than me. A cure for cancer would mean that instead of knowing that I will leave my boys with a gaping hole in their lives, I might get to see them grow up, dance with them at their weddings, meet my grandchildren. The list … Continue reading Chasing a Cure, Part I, a PROBLEM

Calling All Patient Advocates

When I was newly diagnosed, I had no energy to do much of anything but stay alive, go to doctor appointments, read as much as possible to try to understand and try to do stuff around the house. I was also closing down my law office transitioning staff and clients and furniture and dealing with … Continue reading Calling All Patient Advocates

The Light gets in …

“Yes you have been broken.But you won’t stay shattered for ever my friend.You will scrape those little shards of your soul from the floor and pull them all together to rebuild, better than before.Stronger.But this time there will be cracks…and that is how the light will get in.And you may not keep all the little … Continue reading The Light gets in …

Pro What?

Recently, a Supreme Court opinion was leaked that has sent some shockwaves across the world. The opinion would reverse decades of opinions based on Roe v. Wade and change the legal landscape when it comes to abortion. Many states that don't have laws about abortion on the books or have laws that haven't been enforced … Continue reading Pro What?

Grief Tourists Who Go TOO Far

I am thankful to Chelsey Gomez and a recent Journeying Beyond Breast Cancer weekly blog roundup for learning this term: "Grief Tourists." You should check out her writing and follow her as well as the weekly round-up of blogs. I also like the definition below from BladderCancer.net, a HealthUnion site like AdvancedBreastCancer.net, for which I … Continue reading Grief Tourists Who Go TOO Far

A follow up to billing issues …

I wrote a blog post recently about feeling in the middle between my insurance company and my cancer center this week and you can access that here if you are curious about that. In the midst of that experience, I had multiple conversations with people in my life about medical billing issues AND received bills … Continue reading A follow up to billing issues …

To my youngest son on the 7th anniversary of your birth

Malcolm-- This year, you turned 7 on the 7th and we have noticed such a difference in you this year. We think back to your rather tumultuous entry into the world and how at every moment since, you have chosen your own path. You throw every bit of your being into whatever it is that … Continue reading To my youngest son on the 7th anniversary of your birth