Hysterectomy oophorectomy hysterectomy Journal entry by Abigail Johnston — Aug 31, 2017 I went to my preop appointment today with the gyn oncology surgeon and plans have changed yet again!! I respect his process but he keeps changing his mind ... as far as I understand it, since I did test positive for the ATM genetic mutation, he … Continue reading From August 31, 2017 →

Discharged Journal entry by Abigail Johnston — Aug 28, 2017 From ongoing care with my Orthopaedic surgeon. Great news is that the right femur bone where there was the 5 cm tumor is showing remodeling (meaning the bone is replacing the cancer). Weird to see the hardware inside my bones and the screws securing the rods but thankful … Continue reading From August 28, 2017 →

Great news!! Journal entry by Abigail Johnston — Aug 24, 2017 Now we know that tumor markers aren't everything and aren't precise ... BUT ...my blood work from yesterday came back and the changes are amazing!! One marker started at 75 and is now 2. Yes, 2, not a typo. That's normal!!!!! The other one started at nearly … Continue reading From August 24, 2017 →

What's next ... Journal entry by Abigail Johnston — Aug 21, 2017 Saw the medical oncologist today and discussed the medication that they will use next to treat my cancer. Starting Ibrance and Letrozole now. Hope is that I will be able to reach NEAD which stands for no evidence of active disease. The odd thing about this … Continue reading From August 21, 2017 →

Second opinions Journal entry by Abigail Johnston — Aug 12, 2017 We've toured Florida over the past few days with hundreds of pages of records and CDs with scans! First stop was Tampa and the Moffitt Cancer Center and then we ended up in Miami at the Baptist hospital Cancer Center, newly connected to Sloan Kettering in NY. … Continue reading From August 12, 2017 →

Home again!! Journal entry by Abigail Johnston — Aug 8, 2017 Was released to come home today. Pain free!!! No real idea why I was in so much pain but discovered that I do have a bone met near the left TMJ. Our assumption is that all the sinus pressure, inflammation and mucous put pressure on the exact … Continue reading From August 8, 2017 →

Pain, scans and back to the hospital we go ... Journal entry by Abigail Johnston — Aug 6, 2017 As many of you know, I had my repeat bone scan on Friday to test the effectiveness of the chemo and radiation and to help determine next steps. It worked out well that I was already getting scanned because … Continue reading From August 6, 2017 →

GYN surgeon Journal entry by Abigail Johnston — Aug 2, 2017 Scheduled surgery for September 11th. Genetic testing will break the tie between oophorectomy or hysterectomy. Surgeon leaning towards the former as part of the risk/benefit analysis. Ultrasound coming up on the 14th after we get the second opinions from Moffit and Baptist next week. Hold your children … Continue reading From August 2, 2017 →

Getting over the common cold   Journal entry by Abigail Johnston — Aug 1, 2017 I finally caught the virus that everyone else in the house has been battling for the past two weeks and have never felt so terrible with just a cold! White blood cell count is the lowest at 7 to 10 days after chemo … Continue reading From August 1, 2017 →

What's next? Journal entry by Abigail Johnston — Jul 26, 2017 Thank you to everyone who has checked in with me. It's been such a whirlwind since I got home from the hospital and I haven't done as good a job as I'd planned to keep everyone updated. So ... First round of chemo ... done! First round … Continue reading From July 26, 2017 →