I arrived on a cold (at least cold for this Florida-girl) and blustery day in Philadelphia for the HU Connexion Conference in October of 2019. This is the third conference of this kind for the parent company behind advancedbreastcancer.net, (aka ABC) which I write for. Health Union, LLC owns and operates more than twenty disease … Continue reading Health Union Connexion Conference 2019
Medical Update, 2nd of 2020, part II
After I wrote such a long post on Monday, I realized that there were some rather humorous things that happened while I was in the hospital. Yes, even amongst the pain and misery and general yuckiness that happens when they wake you up every few hours to make sure your vitals are still in normal … Continue reading Medical Update, 2nd of 2020, part II
Medical update, 2nd of 2020, medical mysteries
I had not planned to post yet another medical update, nor do I really like having information to share that constitutes a medical update; however, such is the existence of those of us living with Metastatic Breast Cancer (MBC). So, here I am. Last week, as Elliot and I were preparing to head to Orlando … Continue reading Medical update, 2nd of 2020, medical mysteries
The Day That They Hear Us
These are the lyrics of the song written by Shannon Curtis to highlight the plight of those of us living with stage IV metastatic breast cancer. I know today you were too tired For feet to ever reach the floor I'm here to tell you it's alright, I've been there before Today I woke up … Continue reading The Day That They Hear Us
2019 Metavivor Stampede and METup Die in
This year was the second time that my husband, Elliot, and I went to DC for the Metavivor stampede and the METup Die In. Last year, we were nearly entirely focused on the Die In and I think we didn't enjoy the time as much. This year, we had a very different experience. Why? I … Continue reading 2019 Metavivor Stampede and METup Die in
The Violence of Cancer
I was at the San Antonio Breast Cancer Symposium (SABCS) in early December, 2019, when a tweet was posted by Liza Bernstein referring to the "violence of cancer. " At first, I thought I would disagree with the characterization and then, when I spent some time pondering the concept, I discovered that it resonates with me … Continue reading The Violence of Cancer
Medical Update, first of 2020
It's 2020 and I'm still marveling that the 90s were so long ago! 2019 ended on a not so great note medically as I've been dealing with increasing right leg pain for the last few months. I did not repeat the mistakes I made when I was initially diagnosed and definitely reported my pain, frequently … Continue reading Medical Update, first of 2020
New Year’s Day 2020
2020 is here. Each new season and calendar change means something very different to me now. When I was young, I felt the frustration and anticipation of yearning to be older and for time to pass more quickly. As I've gotten older, time seems to move too fast sometimes and not fast enough at other … Continue reading New Year’s Day 2020
New Year’s Eve 2019
2017 was a doozy, probably the worst year of my life to date. 2018 and 2019 have been quite different as we continue to recover from 2017 and discover how our lives have changed. Every time I start to think we've figured something out, things change. The saying ... "the only constant is change" ... … Continue reading New Year’s Eve 2019
Christmas Day 2019
Christmas has changed quite a bit for me since I was a child. Even though my parents did a lot to remind us what Christmas means to those of us in the Christian faith, it was genuinely mostly about presents. I see this same perspective in my boys. Despite our best efforts and discussions and … Continue reading Christmas Day 2019
No Half Measures 