I've written before about the Fear of Missing out or "FOMO" as it pertains to parenting and the limitations of MBC that affects my ability to actively and physically participate in life with my children. Thanks to COVID-19 and the pandemic, we're definitely drowning in family time right now. At the same time, the lack … Continue reading Missing Out
Experimentation Update, June 2020
As some of you are aware, I embarked upon an oncologist directed experiment of one (1) person (me) about three (3) months ago when we added Kisquali (a/k/a ribociclib, a CDK4/6 inhibitor) to targeted therapy, Piqray (a/k/a Alpelisib), along with Faslodex (a/k/a Fulvestrant) and a rather lengthy list of medications to address side effects and … Continue reading Experimentation Update, June 2020
When a loved one gets it wrong
The impetus for this post came from a rather difficult conversation in one of my breast cancer support groups recently. I'm not referring to any one particular person in this post and some of it isn't even about me or my own experiences. This post is purely my own musings. At the same time, I've … Continue reading When a loved one gets it wrong
National Cancer Survivor’s Day
I started this post a little while ago and have been coming back to it over the last week or so trying to figure out what I want to say, what I feel about today and the purpose of today. If this post feels disjointed that’s because that’s the way I feel right now in … Continue reading National Cancer Survivor’s Day
Medical Update, ONJ
About three weeks ago, I started to feel pain in the lower left quadrant of my mouth, tooth #18 to be exact. I’m one of those weird people with more alkaline than acidic salvia and at age 41, I’ve still never had a cavity. (knock on wood). Braces, yes, twice, and I struggle with tarter … Continue reading Medical Update, ONJ
Fathers and Sons, Mothers and Daughters
In this time of COVID-19, I’ve had the chance to watch new shows on Netflix and rewatch favorites I’ve already watched. One such series that I spent time rewatching recently was Game of Thrones (GOT). Much of the hype around GOT happened while I was busy juggling motherhood and a busy law practice, so I … Continue reading Fathers and Sons, Mothers and Daughters
Human Touch
I'm a WASP (White Anglo Saxon Protestant) and I was raised in the Midwest. When I moved to Orlando for college a few decades ago, I was astonished at how much unsolicited touching occurred. I often had to explain to people that it wasn't that I didn't like them, it was just that they were … Continue reading Human Touch
Expectations, Part I
I’ve been thinking a lot lately about expectations and particularly the expectations that have been unfulfilled in my life since I've been dealing with Stage IV Metastatic Breast Cancer (MBC). For me, I often don't realize in the moment when something happens (or doesn't happen) that an expectation has been unfulfilled, it's usually once I … Continue reading Expectations, Part I
Ordinary Love
One of the things we talk about regularly in our Stage IV cancer support groups is how often the media gets it wrong with the language that is used and when. We hear "She lost her battle" regularly and the commercials for various cancer medication are often nauseatingly upbeat with a lack of the miserable … Continue reading Ordinary Love
Electronic Resources, Overview
I’ve often said that those of us in the breast cancer community are in the best position to know what would be helpful to the community. The men and women I’ve met in the last three years have more than impressed me with their creativity and commitment to helping others without asking anything in return. … Continue reading Electronic Resources, Overview
No Half Measures 