It seems like quite a while since I've posted a medical update. Pretty sure that's a good thing! My last PET/CT was in September, 2020, and it showed that the current medication is keeping the mets stable, which is a good thing. I'll always hope for NED, which stands for No Evidence of Disease or … Continue reading Another Medical Update: BIONJ, November 2020
Why is Cancer Fatigue so debilitating?
When I was diagnosed with Stage IV Metastatic Breast Cancer (MBC) in 2017, I thought I knew what fatigue was. I've powered through many nights of none or little sleep in my life, through graduate school, through starting a business that occupied every waking moment, through two pregnancies, and two children while managing said business. … Continue reading Why is Cancer Fatigue so debilitating?
Support Groups
I have found myself encountering different crisis throughout my life and the times that I've handled that crisis better (not particularly well, just better) was when I found a group of people in the same or similar phases of life so that we could face that crisis together. Whether it was wanting to be married … Continue reading Support Groups
An Anniversary and a Radio Show
WordPress told me that I’ve now officially been blogging on this site for two full years the other day ... I’m rather amazed that two years have passed and while I know that’s not abnormal from being a parent, the realization that the days indeed appear long but time passes quickly, can be sobering. I … Continue reading An Anniversary and a Radio Show
Orlando Metsquerade 2020
The inaugural Orlando Metsquerade was in February of 2019 and I wrote about my experiences attending this lovely event here. I put together a collage of some of my favorite pictures from that time where we spent time with some amazing friends below ... Starting in the top left, and continuing clockwise: 1) Heather Rich, … Continue reading Orlando Metsquerade 2020
Did you know!?
The beautiful Adiba Barney, who made the lovely graphics I’ve been sharing all month, is also living with Stage IV metastatic breast cancer and she just published a book!! I highly recommend learning more about her experiences with MBC and taking the worst thing that has happened to her and turning it into purpose. Her … Continue reading Did you know!?
Looking back on BCAM and #LightUpMBC
On October 13, 2020, Metastatic Breast Cancer (MBC) Awareness Day, thousands of people tuned in to learn about MBC from the #LightUpMBC Virtual Gala. You can access the recording of the live-stream here: https://www.facebook.com/metavivor/videos/334839697816177 Livestream link -- fast forward to the live content about 30 minutes from the start! I was honored to take part … Continue reading Looking back on BCAM and #LightUpMBC
BCAM: A Wrap Up
Still hanging in there? I get tunnel vision at times and focus on one issue or one thing to the exclusion of most everything else. This can be useful at times, like preparing for a trial or a surgery or getting a project done; at the same time, it can be problematic as well. For … Continue reading BCAM: A Wrap Up
BCAM: October 31st
It's been quite the month, right? If you have stuck with me this whole month of facts and information about Metastatic Breast Cancer (MBC), you deserve a medal! Go ahead and pat yourself on the back for getting to the end of Breast Cancer Awareness Month (BCAM) 2020 a/k/a Pinktober a/k/a Stinktober. And now remember … Continue reading BCAM: October 31st
BCAM: October 30th
Labels. Labels are fraught with meaning and can be difficult for a variety of meanings. Adiba tackles the label survivor in this way ... Breast Cancer Survivor. What does that actually mean? Should I that live with metastatic breast cancer ever be called a survivor? I say no! Please don't call me that!You hear breast … Continue reading BCAM: October 30th
No Half Measures 