Pain. It's my constant companion. Adiba and I share the status of having bone only metastases. While having bone only metastases is associated with a statistically longer life expectancy (approximately 10 years rather than the overall 2-3 year median life expectancy), the constant and chronic pain can really wear on a person. Here's how Adiba … Continue reading BCAM: October 28th
Category: General
BCAM: October 24th
Medication--those of us with Metastatic Breast Cancer (MBC), we take a LOT of medication, every day. Sometimes, we have no choice as to the modality or location the medication is taken. Some examples of the modality are: 1) pill; 2) injection; or 3) infusion. Some examples of location are: 1) home; 2) doctor's office; 3) … Continue reading BCAM: October 24th
BCAM: October 23rd
Advocacy. What is advocacy? Adiba demonstrates one element of advocacy, testifying before elected officials here ... Does this seem daunting? Not everyone will testify before Congress in Washington, D.C., although I have to say I that's one of my goals! Each and every person can advocate in their own ways; the quiet, unacknowledged, and ongoing … Continue reading BCAM: October 23rd
BCAM: October 22nd
Did you know that Metastatic Breast Cancer (MBC) patients need to wait five (5) months after a terminal diagnosis to be eligible to receive social security? And then another twenty-four (24) months after eligibility for social security to receive Medicare? Here's how Adiba highlights the issue ... In 2019, for the annual Metavivor Stampede, I … Continue reading BCAM: October 22nd
BCAM: October 21st
Identity. It is made up of many different components and is often different for different people. For those of us who went to school for years and years to attain a certain degree or status or position, that effort and attaining that goal becomes a part of our identity. Here's how Adiba view her loss … Continue reading BCAM: October 21st
5 Love Languages and Those Who Contribute in the house
The work around a home or house has actually got to be a few of the least thanked work ever produced. Whether it is the lawn deal with the weekend, …5 Love Languages and Those Who Contribute in the house
BCAM: October 17th
Those of us who are terminally ill often hear -- what can I do to help? For all of you who are wondering how to help, read on ... Know first that it's very hard for people to ask for help in general. I had to force myself as it did not come easy to … Continue reading BCAM: October 17th
A Pinktober Contest and #4forStageIV
#4forStageIV Four word for stage IV metastatic breast cancer: these four important words describe only the tip of the psychosocial iceberg that is …A Pinktober Contest and #4forStageIV
BCAM: October 6th
I am asked regularly -- "when will you be done with treatment" or "How are you recovering" or something similar. In my view, the fact that I'm asked these questions comes from two places: 1) people don't know what to say/ask, so they say/ask something that comes to mind; and 2) there is a fundamental … Continue reading BCAM: October 6th
BCAM; October 2nd
In the Metastatic Breast Cancer (MBC) Community, we gain and lose men and women every day. We know that approximately 116 men and women die in the US every day from MBC, but we don't know how many are diagnosed since the SEER database doesn't count us correctly. I'll share more about this later in … Continue reading BCAM; October 2nd
