When I was newly diagnosed, I had no energy to do much of anything but stay alive, go to doctor appointments, read as much as possible to try to understand and try to do stuff around the house. I was also closing down my law office transitioning staff and clients and furniture and dealing with … Continue reading Calling All Patient Advocates
Category: General
The Light gets in …
“Yes you have been broken.But you won’t stay shattered for ever my friend.You will scrape those little shards of your soul from the floor and pull them all together to rebuild, better than before.Stronger.But this time there will be cracks…and that is how the light will get in.And you may not keep all the little … Continue reading The Light gets in …
Pro What?
Recently, a Supreme Court opinion was leaked that has sent some shockwaves across the world. The opinion would reverse decades of opinions based on Roe v. Wade and change the legal landscape when it comes to abortion. Many states that don't have laws about abortion on the books or have laws that haven't been enforced … Continue reading Pro What?
Grief Tourists Who Go TOO Far
I am thankful to Chelsey Gomez and a recent Journeying Beyond Breast Cancer weekly blog roundup for learning this term: "Grief Tourists." You should check out her writing and follow her as well as the weekly round-up of blogs. I also like the definition below from BladderCancer.net, a HealthUnion site like AdvancedBreastCancer.net, for which I … Continue reading Grief Tourists Who Go TOO Far
305PinkPack
As many of you know, I currently live in Miami, Florida and I've posted/talked about my involvement with the 305PinkPack at various times. The Pack, as we often term it, is the brainchild of Rosemary Carrera, a breast cancer survivor, a medical professional, and all around amazing person. Here is how she describes her experience … Continue reading 305PinkPack
BIG NEWS!!
It's with many many many mixed feelings that we officially announce our move from Miami back to Orlando in June of this year after the boys finish the 2021/2022 school year. As many of you know, when I was diagnosed with Stage IV Metastatic Breast Cancer back in 2017, we moved to Miami to be … Continue reading BIG NEWS!!
I don’t want to be in the middle!!!
As the eldest of six (6), I've never experienced the woes of the middle children, but I think I might be starting to understand a little of how/why they tend have some objections to the way they are treated. My experiences aren't the result of family dynamics, but the experience of being a patient who … Continue reading I don’t want to be in the middle!!!
When you feel brushed aside … a bit of a rant …
I’m not habitually a complainer. My main focus for most of my life has been to be a planner, a caregiver, a problem solver. I was the person that others asked for help with legal issues in my professional life and that definitely affected my personal life as well. Sure, there were always stressors and … Continue reading When you feel brushed aside … a bit of a rant …
Book Review: Hope Rising; How the Science of Hope Can Change Your Life
Recently, a dear friend and fellow MBC'er Andra Kalnins and her sister, Ilga Leimanis, began posting about their project entitled "Sister Hope." I was intrigued and followed how they presented the culmination of their discussions and activities as they worked together to process Andra's recurrent Stage IV Metastatic Breast Cancer diagnosis. As I did, I … Continue reading Book Review: Hope Rising; How the Science of Hope Can Change Your Life
Guilt vs Shame, Part II
In Part I, which was published last week and you can access here, I examined whether a person struggling with what they are labeling "survivor's guilt" are actually experiencing shame. My conclusion, based on the definitions, my own experiences, and some research, was that there is a combination of both. One element that I believe … Continue reading Guilt vs Shame, Part II
No Half Measures 