On August 2nd, I traveled up to the Mayo Clinic in Jacksonville for the 2nd PET/CT since I started my 7th line of treatment, Enhertu. If you aren't familiar with the refrain: "treat, scan, repeat," let me just say that it's a vicious rollercoaster I've been riding since my de novo Stage IV Metastatic Breast … Continue reading Medical Updates after PET #2 on Enhertu
Author: Abigail Johnston
Accessing Supportive Care
Recently, I was asked to participate as a patient partner for a webinar through the Multinational Association of Supportive Care in Cancer (MASCC; https://mascc.org) on Precision Medicine for Hormone Receptor Positive Breast Cancer: New Therapies and Supportive Care Strategies. Dr. and Professor Maryam Lustburg and Dr. Aditya Bardia presented about medications and strategies and I … Continue reading Accessing Supportive Care
My 7th Metaversary
March 8, 2017, I received my breast cancer diagnosis and on June 27, 2017, I was told that I had actually been Stage IV from the beginning (aka de novo). I've marked the former as my cancerversary for the last seven years (check out the post I wrote in March about that 7th cancerversary here) … Continue reading My 7th Metaversary
A reshare from AdvancedBreastCancer.net: A new Vocabulary, terms every MBC patient needs to know, P-Z
Many of you are aware that I have been writing for AdvancedBreastCancer.net for the last several years. You can read all the articles I’ve published there via this link: https://advancedbreastcancer.net/author/abigail-johnston-esquire, I wanted to share here a series of articles I wrote for them that many of you made suggestions for some time ago … When … Continue reading A reshare from AdvancedBreastCancer.net: A new Vocabulary, terms every MBC patient needs to know, P-Z
Extra Spoons: A Ritalin Experiment
One of the most devastating side effects of my new line of treatment (Enhertu) is the crushing fatigue. This is a type of fatigue that is difficult to describe. It's like every cell has an anchor to it, like each body part is tied to the bed, even my eyelids feel heavy, and taking a … Continue reading Extra Spoons: A Ritalin Experiment
ReBlog from Journeying Beyond Breast Cancer: Weekly Round-Up
Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me … Weekly Round-Up
A reshare from AdvancedBreastCancer.net: A new Vocabulary, terms every MBC patient needs to know, H-O
Many of you are aware that I have been writing for AdvancedBreastCancer.net for the last several years. You can read all the articles I’ve published there via this link: https://advancedbreastcancer.net/author/abigail-johnston-esquire, I wanted to share here a series of articles I wrote for them that many of you made suggestions for some time ago … When … Continue reading A reshare from AdvancedBreastCancer.net: A new Vocabulary, terms every MBC patient needs to know, H-O
ReBlog from Journeying Beyond Breast Cancer: Weekly Round-Up
Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me … Weekly Round-Up
7th Cancerversary
Amazingly enough, today marks seven (7) years, eighty-four (84) months, three hundred and sixty-four (364) weeks, two thousand five hundred fifty-five (2,555) days, sixty-one thousand three hundred, twenty (61,320) hours, three million six hundred seventy-one thousand two hundred (3,671,200) minutes, and two hundred twenty million seven hundred fifty-two thousand (220,752,000) seconds since I was told … Continue reading 7th Cancerversary
ReBlog from Journeying Beyond Breast Cancer: Weekly Round-Up
Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me … Weekly Round-Up





