Putting all of these timelines together is astonishing. When we are first diagnosed, it is a whirlwind of treatment, surgeries, medication, doctor visits and learning a whole new language. Add in the psychological affects of assimilating the knowledge of a truncated life expectancy and it’s super complicated.
And yet all the normal things of life are going on under the surface at the same time.
The mortgage still has to be paid, the laundry done, gas is needed for the car, groceries purchased and lunches packed. We can’t get away from our usual responsibilities just because we have an illness and just when we think there is a safety net, that there is a back up, we learn that we must wait.
It’s not reasonable and it doesn’t make sense.
And that’s why we are working to get that changed through the Metavivor Stampede. If you or someone you know is interested in getting into some legislative advocacy, this is a rewarding program. You can learn more at: https://www.metavivor.org/take-action/stage-iv-stampede/