Sounds a bit medieval, right?
When I showed up for my pre-surgical appointment, I was told for the first time that a radiologist would be inserted wires in my breast tissue to guide the surgeon in ensuring that she cut precisely and removed both tumors and then weird space in between that looked like it was organizing. A bit too late for me to suggest any other options and I was so overwhelmed at the time that I’m not sure I could have asked anything with any logical thought.
So after the second mammogram of my life (the first was in the midst of the diagnosis), after injecting some lidocaine, the radiologist inserted three different wires (or maybe 4) to mark the tumor and its surroundings so that it could all be removed. Since it was done under ultrasound guidance, I found myself lying on my back, surrounded by three women all staring intently either at my exposed breast or the ultrasound screen as the minutes ticked down to when I was supposed to be in the operating room.
Let me just stop a moment and talk about the uncomfortableness of having ones private areas exposed for all to see and how little is done to protect one’s modesty during a medical experience. I’d thought that modesty was a thing of the past for my chest since I’d gone through two pregnancies and had been breastfeeding for four years, but suddenly, my breasts weren’t being used for their function, they were suspect. All those eyes and the markers, it was overwhelming at times.
Anyway, back to the wires. The radiologist was a perfectionist, as I suppose all radiologists should be, and she wasn’t happy with her work and repeated the placement or wiggled the wires for long enough that my surgery had to be pushed back a bit. The lidocaine had definitely worn off before they put me into an ambulance to be transported across the street to the hospital for the surgery.
It sounds a little barbaric now that I was moving around with multiple wires sticking out of my breast, but I am thankful for the skill of both surgeons and the clear margins from that surgery. I might have made different decisions about my surgery if I’d known I was Stage IV from the beginning, but I don’t beat myself up for making the best decision I could with the information I had at the time.
For all of you who are looking into or research surgical options, have a listen to my discussion with Dr. Fazila Seker about how technology companies can make patient lives easier by educating our doctors on the latest and greatest techniques and tools available. Then check out Molli Surgical and share the information with a friend, preferably a friend in the medical profession.
Reblogged this on By the Mighty Mumford and commented:
SURE GLAD SHE DIDN’T HAVE A BATTERY HOOKED UP. I DON’T THINK ON SITE ELECTROPHORESIS (!) WOULD HAVE HELPED EITHER. SHOCKIG.
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Oh i Had the same wire mammography as they called it when I Insistent on the lump back to me that nobody wanted to give me. I wanted that lump out and I wanted it out because psychologically it was going to help me to get through but I had to get through. I’m glad that you did this video and raise peoples awareness about it. I’m also very interested in your buddy group so if he would reach out to me or tell me where to reach out to you I would love to take part in such a wonderful program. Love and light as always and I love you dearly
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Are you talking about the sister buddy program? I run a Facebook support group called “Living Metastatic One Day at a Time” and the program is part of that. Happy for you to join us! We also have a zoom support gathering every other Monday that my dad and I moderate. ❤️
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Yes I’d love to and mondays seem the day for support groups. I have one ending weekly at 4 pacific til 5:30 and one ongoing from 5-6:30 pacific every other week. I am sitting here in the hospital waiting for my fluid to be drained before it drains me. Hope you’re doing better yourself. Time- a friend and foe.
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You are so right!! Both a friend and a foe. I invited you to join the group. ❤️
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Someday in the future people will read of the things we did in medicine and consider how barbaric we were. But what else is there to do but keep trying and learning using patients as the guinea pigs.
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Such a true statement!!
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