Until relatively recently, I had no idea what a podcast was. Literally. When people talked about hosting or speaking on a podcast, I probably had quite the quizzical look on my fact. I don’t remember when I finally figured it out. It probably had something to do with my dear Emily Garnett’s podcast, The Intersection of Cancer and Life, which I listened to avidly. Her podcast was the first time I was a guest on a podcast and it’s still my favorite ever. You can listen to our discussion here from November of 2018, which was recorded a year before we actually met in Washington DC in October of 2019, right before her diagnosis of leptomeningeal metastases.
And now, I find that I love podcasts. The unique voices of different hosts and their guests are incredible and I follow quite a few of them, listening to each new episode as soon as it drops. The only drawback right now is that I’m not driving as much as I used to because of COVID, so I’ve had to find other times that I can do something with my hands while listening. I find cross-stitching or other crafts are uniquely suited for this — I can’t sit still long enough to listen to an entire episode.
Recently, a new podcast launched, titled Our MBC Life. This effort is underwritten by SHARE Cancer Support, a non-profit focused on supporting patients with breast and ovarian cancer. The effort of Our MBC Life is to highlight the advocacy and efforts of patients with Metastatic Breast Cancer (MBC) and is hosted by patients with MBC.
What a powerful example of the often repeated refrain in the MBC Community:
“Nothing for us without us.”
I was honored to participated in one of the early episodes recorded by Our MBC Life to highlight and honor my dear Emily Garnett, her life, her advocacy and her legacy. The discussion was between myself, the host, Lisa Laudico, and Emily’s widower, Christian Garnett. Christian has taken it upon himself to grieve openly for Emily, to keep her legacy front and center, and to continue her projects in the way that she would have wanted.
You can access our discussion about Emily, grieving, and legacy here.
Lisa Laudico also recently shared a conversation she had with Emily prior to her death that no one else had heard until recently. Listen here for that conversation.
I am also extremely excited about participating in a live podcast TONIGHT with my friend, Alyson Tischler, who is living with metastatic triple negative breast cancer, and Laura Carfang, a survivor and the energy behind SurvivingBreastCancer.org!! Here’s the link to register for the discussion: Registration. We will talk about a new medication approved by the FDA specifically for those who are metastatic triple negative (mTNBC) and then a whole lot of other initiatives, including Alyson and my current project, MBC Grieving Together.
We hope you can join us and learn more about the MBC community and the needs of this unique group of men and women learning to live while dying.