There is controversy about how to figure out which research studies are actually focused on metastatic patients. I’ve read the titles of research studies that contained the word “metastatic,” but once you look at the purpose of the study, it is clearly not for stage IV patients. Reading research studies and discovering that the title was not reflective of what actually was being looked at is INFURIATING.
We metastatic people make up 30-40% of people living with breast cancer.
Why don’t we get a commensurate amount of research?
I’ve also heard the argument that research should be like triage, focusing on the patients worse off first. It absolutely feels like we’re all issued our black toe tags at diagnosis.
Not dead yet over here.