Next steps …
Xgeva and Lupron shots this week
Scheduling a PET scan
Starting meds once pharmacy is worked out
Oophorectomy on 9/11
Working on building my stamina right now as I get tired so easily. PT is still twice a week. Going to be released from no lifting this week and will be focusing on staying active and working on conditioning.
Thank you to everyone who has continued to check in and continued to support my family while I’m still adjusting. We are so blessed.
Good thing to come out of both appointments is that other than some minor tweaks both medical oncologists agreed with and supported the treatment I’ve been getting and my current doctor is planning to go to next. Both doctors were a bit shocked as to the presentation of my cancer and how it developed.
Only real downside was all the waiting around and the fact that there are no identified trials for me. Not that we have to be in a trial but we were hopeful that perhaps I could be involved with something newly developing. Again, silver lining is that one of the reasons that I don’t yet qualify is that I’ve not had a failure of any medication thus far.
So, we’re headed home to hug the boys and figure out next steps. I’m still recovering from whatever was going on in my face and jaw and the hospitalization over last weekend. Nearly done with antibiotics and steroids from that adventure.
Thank you all for your prayers and checking in on us. There are no truly easy days but we are adjusting and figuring out this new normal as best we can.
Bone scan results are in and it appears to show stable mets but no real indication of progress. Medical oncologist is pleased with this so am trying to adjust my expectations and remind myself that this is my new normal.
Results of the full genetic panel came in today and I am positive for the ATM gene. Increased risk for both breast and pancreatic cancer.
Consult with Moffit Center is tomorrow and then with Baptist Hospital on Friday. Hoping for some insight and help interpreting what we know and don’t know.
Hold your children tight tonight. Tomorrow is not promised to us and everything can change in an instant.