I've written before about genetic and genomic testing and how that has affected me personally and affected my choices regarding care. You can read those articles if you'd like: ATM Mutation, Mutations Become Targets, Receptors, and Cancer Prevention versus Risk Reduction. Let me start this particular discussion by saying that I believe all knowledge is … Continue reading Genetic Testing?
Category: General
Reblog from Journeying Beyond Breast Cancer: Weekly Round Up
Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me …Weekly Round Up
Siblings and Family Dynamics
Regardless of what our family looks like, we all come from a group of people who have shaped us for our entire lives. The make up of each family is incredibly unique; the dynamics affecting each one is a combination of both static and changing factors. As most mental health experts will tell you, we … Continue reading Siblings and Family Dynamics
Chasing a Cure; Part IV: Causation vs Correlation
This series is just growing as I think more and more about issues that come up when addressing research and how it applies to the progress towards a cure for cancer. If you are interested, you can access Part I, II, and III to get caught up. Just so we're on the same page, there … Continue reading Chasing a Cure; Part IV: Causation vs Correlation
QUOTE from Chameleon Aura by Billy Chapata
A dear friend from Twitter, Mia a/k/a @BSBreastCancer, recently gifted me with the book, Chameleon Aura, which is amazing. I love this quote from the back page ... know that you are magic.you are not meant to be the person that you were yesterday.you are meant to be an extension of all the beautiful things … Continue reading QUOTE from Chameleon Aura by Billy Chapata
Chasing a Cure, Part III, staying abreast of research
Recently, in June of this year, the American Society of Clinical Oncology (ASCO) had their annual meeting. This annual meeting, always held in Chicago, is the largest cancer conference in the world bringing tens of thousands of health care professionals, patient advocates, pharmaceutical representatives and all those vendors and companies that are connected to the … Continue reading Chasing a Cure, Part III, staying abreast of research
See ya Later Miami, Hello Orlando
When we moved from Orlando to Miami in October of 2017, we thought it was forever, or at least I did. I expected to die at some point while we lived in Miami. In 2017, I'd recently been diagnosed with Stage IV Metastatic Breast Cancer (MBC) and had learned that the median life expectancy was … Continue reading See ya Later Miami, Hello Orlando
Book Review: Holding Space, on Loving, Dying, and Letting Go
I've written before about Holding Space and how much I suck at it. From an early age, I was socialized to be a caregiver, a problem solver, a person who jumped in and helped. This idea of sitting in solidarity, of holding space, has been such a huge learning experience since my diagnosis in 2017 … Continue reading Book Review: Holding Space, on Loving, Dying, and Letting Go
Chasing a Cure, Part II, evaluating legitimacy
In Part I, I laid out some of reasons why finding a cure for cancer is a really big deal. A REALLY BIG DEAL. So many people's lives are riding on medical innovation and creativity, mine included. And so it's important to be able to evaluate whether a "source" or a "study" is something to … Continue reading Chasing a Cure, Part II, evaluating legitimacy
Who am I?
Who you really are is the result of many many things. How you deal with fear. Who you surround yourself with. And how you show up when it matters”Meredith Grey on Grey’s Anatomy, Season 18, episode 12 Recently, in a support group that my Dad and I moderate for those who are living with Stage … Continue reading Who am I?
No Half Measures 