I’ve been metastatic for over 2 years and I’ve never gotten to No Evidence of Disease (NED). That is partially because my cancer is sneaky and aggressive. It’s also because I have bone Mets.
When breast cancer spreads to the bone, it literally eats the bone cells. This means that once those Mets are nuked by chemo or targeted therapy or whatever I’m taking to kill them, I end up with literal holes in my bones. I wrote a blog about it and included an instructional picture here. I get a monthly infusion of a medication called Zometa that helps my bones repair those holes.
The limitation of the scans like the PET (positron emission tomography) which utilize radiation to “see” the cancer, is that cancer, infection, healing bone, dead areas, etc., all show up black on the scan. That’s a pretty big limitation.
For those of us with bone Mets, our goal is NEAD, which stands for No Evidence of Active Disease. I’m still praying that I get there someday, but it hasn’t happened yet.