A chronic disease is one that can be managed such that a person’s life expectancy is not changed.
I was 38 when I was told that my life expectancy had just shrunk to 2-3 years.
Think about that, for just a second, rather than looking at another 40 to 50 years based on the longevity of the other members of my family, I was told 2-3 years.
That’s a life expectancy cut astonishingly short.
Stage IV is terminal, not chronic.
Today, my husband and I, along with another 150ish members of the MBC community as well as ally’s, will be marching, protesting and lobbying on Capitol Hill. We will cap off the day with a full reading of the play, IV. It will be a long day but we are fighting for something that is incredibly important to me. I’ll be posting about our experiences. Stay tuned!